Next Meeting – November 1 – 1:00 pm

Next Meeting – November 1 – 1:00 pm

Our November guest is Karlene Martin of Shield Healthcare. Shield is a leading supplier for ostomy supplies, so bring your questions about ordering and shipping. We meet at Longmont United Hospital, 1950 Mountain View Ave., Longmont, CO 80501, at 1:00 pm in the Gauguin Room.

The first 15 minutes of our meeting will be a presentation by Charles Sloan.  Charles is continuing to expand his education for ostomy care for nurses at LUH, and will share his latest updates.  Also, there will be time for “Talkin’ with a WOCN”, your opportunity for one-on-one questions with Charles for topics of interest to you!

October 2018 News

October 2018 News

Jenn Davia, our September guest and Physical Therapist specializing in pelvic PT, gave a wonderful presentation on scar tissue management, ostomy anatomy, and hernias. To avoid hernias, basic core strengthening is important.  She noted that three, simple exercises are the most important:

DIAPHRAMATIC BREATHING

  • While lying down on your back, place one hand on your breast bone and one hand on the abdomen near your navel
  • Slowly take a deep breath in and focus on trying to get your hand on your stomach rise while the hand on your breast bone remains still
  • As you breathe in, the hand on your stomach should rise. When you breathe out, the hand on your stomach should lower
  • Repeat: 2 times; Hold: 1 second; Complete: 1 Set; Perform: 2 times/day

 

ISOMETRIC TRANSVERSE ABDOMINAL CONTRACTION (BELLY-TO-SPINE)

  • Lay on your back with your knees bent
  • Place your fingers on your stomach just inside your hip bones to feel the muscle contract
  • Activate your abdominals by pulling in gently with 20-30% effort. “Try to bring your navel to your spine”
  • Hold this contraction for as long as possible to improve endurance
  • Learn to use this muscle with daily activities such as lifting, bending, and rolling
  • Repeat: 5 times; Hold: 10 seconds; Complete: 1 set; Perform: 2 times/day

SUPINE PELVIC FLOOR MUSCLE KEGEL (KEGELS)

  • Lie on your back with your knees bent and feet flat on the mat or bed
  • Contract your pelvic floor muscles by tightening in the vagina
  • Hold this contraction for the prescribed length of time while continuing your normal breathing pattern
  • Be sure to perform a full relax in between each contraction. Do not hold your breath
  • If you find yourself holding your breath, inhale first then exhale while tightening the pelvic floor muscles and abdominals. Continue holding these muscles while you inhale again. When you relax, you should feel both muscles relax
  • Repeat: 10 times; Hold: 10 seconds; Complete: 1 set; Perform: 2 times/day

 

Next Meeting-October 4-1:00 pm

Next Meeting-October 4-1:00 pm

October brings us guest Melissa Hood of Coloplast. The Coloplast story began in 1954 when a nurse’s sister has an ostomy and is afraid to go out in public because she’s afraid of leaks. The nurse, Elise Sørensen,  conceives the idea of the world’s first adhesive ostomy bag.  Today their idea has grown into Coloplast, and includes Ostomy Care, Contience Care, Wound and Skin Care, and Urology Care. Coloplast products are available worldwide and they are celebrating 60 years of service this year.

 

September 2018 News

September 2018 News

Looks like Fall is around the corner here in Colorado.  Leaves are falling and there’s already snow in the high country in Wyoming. I love Fall, but I hear the Farmer’s Almanac is predicting a snowy winter for us.  Well, this IS Colorado!

Speaking Out Changes Lives

World Ostomy Day is sponsored by the International Ostomy Association (IOA)  and celebrated every three years.  This year’s celebration takes place on October 6 with the theme “Speaking Out Changes Lives“. The aim of World Ostomy Day is to improve the rehabilitation of ostomates worldwide by bringing to the attention of the general public and the global community the needs and aspirations of ostomates. Awareness this year is highlighted by Run For Resilience 5K races in various places around the country and virtually. One way to participate is by providing a Letter to the Editor of your local paper.  The UOAA has provided a template for this, and I’ve found it to be effective in the past.

Know Your Pouching System

Jeanine Gleba, UOAA Advocacy Manager, notes in a recent article that the most critical component for living well with an ostomy is finding the right type of ostomy supplies. In a 2017 study called Peoples’ Experiences With Pouches (P.E.W.P.) a majority of ostomates felt they did not receive all of the information that they wanted or needed while in the hospital after ostomy surgery, with lacking product information as the second highest category for inadequacy. In particular “about one quarter of the patients were NOT told that there were other products on the market available to them that may work better for their type of stoma or situation”. I agree! About once a year I review what I’ve been using and then contact all the Manufacturers for free samples. Not only are they great to keep as extra supplies, it’s always good to know if an alternative pouching system will work for you.

Insurance Webinar

I’ve recently run across a webiner sponsored by Hollister Secure Start Services for Ostomy Insurance Reimbursement. Topics covered include Medicare, Medicaid, other Insurances, and Managed Care. Coverage limits are also discussed and broken down by type of ostomy and product.  I found this webinar to be really interesting, and particularly useful for new ostomates trying the navigate insurance requirements.

The forgotten challenge of living with an ostomy: costly medical supplies

Continuing the theme of pouching and supplies this month, I ran across an article in OstomyConnection profiling a man in Tanzania that faced a permanent colostomy. He was looking forward to the surgery, until he realized the expense of his supplies.  His story was recently documented in The Citizen Tanzania and highlights that people all over the world are faced with this decision. OstomyConnection has created Kindred Box, a pay-it-forward initiative connecting people who have excess ostomy supplies to donate to those who need them. Additionaly, organizations like Friends of Ostomates-USAFOW-Canada, and Ostomy211 are useful agencies accepting donated supplies for those that need them.

Canadian Tobacco Warning Labels in the News

Have you heard about or seen the latest kerfuffle surrounding the recent Canadian tobacco warning labels?  One of them used an image of an ostomy pouch as a deterrent against smoking. Many found the image to be offensive, and a public campaign was able to get that particular label removed from the campaign.  I personally found the image quite offensive, and some have noted that perhaps it wouldn’t have been so insulting had it not shown a full ostomy pouch.  VeganOstomy has an interesting article profiling this discussion in a recent blog post.

Next Meeting – September 6 – 1:00 pm

Next Meeting – September 6 – 1:00 pm

What?  It’s September already? We had a really great presentation for our August meeting by our own WOCN, Charles Sloan. He reviewed his talk “Ostomies 101” that he gave to the staff at Longmont United Hospital last month. This presentation was truly excellent.  Thank you, Charles!

For September, our guest is Physical Therapist, Jenn Davia, Integral Physical Therapy. Jenn is passionate about women’s physical therapy, and specializes in pelvic PT. She is also a board certified women’s health clinical specialist (WCS). I met Jenn when I learned that she could help to break up my abdominal adhesions after my surgery. Her presentation will focus on scarring after surgery, risks and advice regarding hernias, and exercises for ostomates. We’ll meet at Longmont United Hospital, September 6 at 1:00 pm in the Gauguin Room.

August 2018 News

August 2018 News

Hope you are all having a good summer!  We just returned from a couple of weeks with family in Florida and a Caribbean cruise. Since my surgery I’ve not had to worry about sweating in the heat, but we sure experienced it on this trip.  It was a little concerning, but my Hollister wafer held up fine. I read a lot about problems with adhesion in hot, humid weather, and I’m now very sympathetic. Here’s some of the news I found interesting this month:

Know Your Ostomy

Joanna Burgess-Stocks, BSN, RN, CWOCN and UOAA Advocacy Chair, has written a number of reports for the UOAA and Ostomy Advocacy, but I think this article, Know Your Ostomy, is particularly useful.  Here she addresses the communication problems we have describing our ostomies, and provides tips for explaining things like color, size, shape and location. Included is a handy checklist that can be printed and used the next time you visit your health care professional.

Study Shows Patients Need More Ostomy Information

Did you receive the information you needed after surgery while you were still in the hospital?  I know I didn’t.  I had an “ostomy” nurse that I suspect couldn’t even spell o-s-t-o-m-y. Fortunately, I had the time before surgery to do a lot of homework, so I didn’t need a lot of support. That’s not typically the case, and this survey shows that almost half of all ostomate patients felt that they received inadequate information and communication from their provider at the hospital. Furthermore, the survey shows that the further back you had surgery the MORE information you received.  The survey included patients all the way back to 1953, and current patients are receiving less information! This leads to many more questions around adequate patient care and why communication has decreased.  There will be follow up surveys to help answer these questions, but clearly there’s much more work to be done to inform patients when they first receive their pouches.

Recap of WOCN Conference 2018 by an Ostomate

At our recent lunch, we mentioned the blogger Eric Polsinelli of VeganOstomy.  Eric writes about his experiences and is a great resource for product reviews. In this article for Shield Healthcare he reports on his trip and invitation to speak at the WOCN 2018 Conference in Philadelphia. He’s a cheerful writer (didn’t like the Walmart noodles!) and his first impression driving into Philadelphia is telling.  The article is filled with interesting pictures of his trip. If this is your first time checking out his website, you’ll find lots of things to see.

GoodHealthWill…..

For those that missed the last meeting, I wanted to give a shout-out to the non-profit healthcare supply group GoodHealthWill. Thanks to Gaylia for sharing this resource.  Located in Loveland (with an additional location in Greeley) GoodHealthWill accepts donations of almost all medical supplies and equipment, and offers them for sale at radically reduced prices.

 

Next Meeting – August 2 – 1:00 pm

Next Meeting – August 2 – 1:00 pm

We had a nice turnout for our Summer lunch outing in July.  Charles Sloan, supporting WOCN at Longmont United Hospital, was able to join us, and he’ll be our Speaker for August.  He’ll be sharing the presentation “Ostomies 101: Assessment and Nursing Interventions”, that he and WOCN Julie Paul prepared for the staff at LUH.  If you missed this presentation last month, try to join us on Thursday, August 2 at 1:00 in the Gauguin Room at Longmont United Hospital.

Next Meeting – July 5 – 12:00 noon

Next Meeting – July 5 – 12:00 noon

Our next meeting will be lunch!  We’re meeting at the Village Inn in Longmont, CO, 1216 South Hover St. at 12:00 noon.  Please RSVP to BoCoOstomyGroup@gmail.com, or leave a message at 720.378.8411.  The latest July newsletter is now available on the Newsletter tab. Hope to see you there! 

July 2018 News

July 2018 News

Our meeting for July is…lunch! We’ll meet at the Village Inn in Longmont, 1216 South Hover St, on Thursday, July 5th at noon. Please RSVP to BoCoOstomyGroup@gmail.com.

In the News

Did you get your ostomy due to ulcerative colitis? If so, there’s a new treatment that’s recently been approved by the FDA.  Xeljanz (tofacitinib) is now approved for adults with moderate to severe forms of UC. I was aware that Xeljanz was in Phase 3 trials at the end of 2015 (just before my surgery) and I thought it would have been approved by the end of last year. Expect to see ads for Xeljanz and UC on the TV soon!

The people that the ostomy industry forgot

When I saw this article from the National Institutes of Health I took note to share it with you. Originally published by the British Journal of General Practice in 2012, this insightful article shows how lucky we are to be able to use the supplies we have, and the creativity of ostomates in developing countries. Fashioning appliances from jar lids and plastic bags, the resourcefulness and resilience of these patients is inspiring. Click on the title above to see the article.

Hernias and Ostomies

More and more I’m reading about problems with hernias after getting an ostomy. There are many articles about this, but one I like is from the British Hernia Centre. This straight-forward article describes how hernias are formed, their impact on patients, and suggestions for healthcare professionals. I’m trying to arrange for a physical therapist to come and speak to our group before the end of the year to address this issue.  Do you have any questions about hernias? (For example, is the risk of hernia higher when it’s new, or does your risk go down over time?).  I’m happy to pass your questions along for our speaker so she can address them.

Dementia Stoma Care

The UOAA (at ostomy.org) recently published an article on the challenges for caregivers when an ostomate develops dementia. As the article points out, “According to the Population Reference Bureau, the number of Americans 65 and older will gradually increase from 15% of our population to 24% by 2050”. Here is the link from that article from the DementiaUK website, “Caring for a person with a stoma and dementia“.

It’s Summer…it’s Hot! 

Summer comes with a lot of challenges for those of us that like to spend time outdoors. From sweating, dehydration and swimming, well, anything might go wrong!  Here’s an article by Eric Polsinelli at VeganOstomy that offers suggestions for helping with summertime problems. I also wrote a blog post about my summer heat and adhesive rashes that you can read here. You can also find other suggestions by doing a quick search on Inspire.com.

UOAA National Conference – 2019

It’s still over a year away, but the UOAA is starting to promote the next National Conference to take place in Philadelphia, August 6-10, 2019.  Registrations will begin in January!

 

 

 

 

 

 

June 2018 News

June 2018 News

A big THANKS to Charles Sloan for speaking at our May meeting. Charles and the WOCN team at Longmont United have been valuable resources for so many patients.  We certainly appreciate their efforts and Charles’ presentation, where he described the role of the WOCN and their responsibilities. The support we receive from nurses like Charles is critical for our success!

Youth Rally

Youth Rally hosts kids with bowel and bladder conditions for a 5-night camp and campus experience.  Focused on kids 11-17, Youth Rally this year will take place at the CU Boulder campus, July 16-21. Many of these campers have ostomies, and this week is used to promote independence, self-esteem, learning, friendship and, of course, FUN! Applications for volunteers are available until June 1.

Disaster Preparedness: Surviving a Firestorm with an Ostomy

Last October, we had a terrible scare when a close friend was caught in the firestorm that enveloped Santa Rosa, CA. He was awakened by his dog, Sparky, (yes, that’s his dog’s name!), and when he went out the front door was met by a red sky and neighbors yelling that they had to get out NOW. He had time to throw Sparky in the car….and that was all. He soon lost everything and today is still living in temporary housing. Are you prepared? Last year Laura Cox, Shield Healthcare’s Ostomy Lifestyle Specialist, advocated having enough supplies for 3 months. I followed her advice and now have a larger cabinet to hold them all! This excellent article, Disaster Preparedness: Surviving a Firestorm with an Ostomy, posted on the UOAA website, was prepared by an advocacy nurse that also fled the night of the fires. In addition to her harrowing story, she offers advice and suggestions, before, during and after a disaster.  Good advice for us all.

Speaking of Charles…..

Charles Sloan and Julie Paul will be teaching a class, “Ostomies 101: Assessment and Nursing Interventions”, for the nursing staff at LUH on June 19, 4-7 pm in the Gauguin Room. This is a comprehensive talk that will include topics such as, ostomy assessment and care, ostomy pouching systems, complications and nursing interventions, and peristomal skin care. Charles has extended an invitation for our support group to attend this talk, which should have a lot of interesting and topical information for all of us.

No More Secrets

I have family in Sweden, and visited with them before my ostomy surgery in 2016. I was pleasantly surprised at the amount of information they had to share with me and the openness they had in wanting to talk about the surgery and how it would impact my life. They were much more prepared than I was! The Swedish health system has promoted efforts to normalize ostomy surgeries and remove stigmas and misconceptions.
Ananda Badet has shared with us the documentary “No More Secrets“. Sadly, not all countries are as progressive as Sweden, and filmmaker Anisha Vijayan is trying to open eyes in India. According to Anisha, India has an estimated 300,000 ostomates, with very little awareness within the country.  She has produced this small film to start a conversation and break the stigma of ostomies in India. It’s a simple film with a powerful message for those that may feel embarrassed or ashamed.